Leo’s Angels, the memorial fund dedicated to harnessing technology to transform epilepsy care and save lives, has appointed Jenny Ousbey to its board of advisors.

Founded in memory of Leo Alan O’Brien who tragically died in 2024 from Sudden Unexpected Death in Epilepsy (SUDEP), Leo’s Angels is dedicated to driving technological innovation in epilepsy care. The initiative was founded by Leo’s mum Emma, CEO of Embridge Consulting, the digital transformation specialist empowering people, processes and technology.

A recognised leader in healthcare policy, communications and patient advocacy, Jenny is the CEO and founder of OVID Health, an award-winning top 25 health comms agency which she established in 2018. Jenny is an industry thought leader in global patient advocacy and creator of the Patient Partnership Index, and has created numerous high-profile campaigns in-house and agency-side for some of the world’s leading pharmaceutical companies.

Her achievements include securing additional investment in dementia research and development, recognition for brain cancer patients, and access to medicines for rare disease patients. Jenny is also a former political advisor to a UK government health minister and a journalist, making her well-equipped for her new advisory role at Leo’s Angels.

Having navigated fragmented healthcare systems when caring for her son, Leo, Emma is now dedicated to funding and developing tools that enhance data-driven decision-making for clinicians, empower families with real-time information and updates, and integrate seamlessly within healthcare systems to reduce delays in treatment.

With her expertise in digital transformation, Emma boasts a strong track record in enabling organisations to overhaul business operations by empowering people, processes and technology, and is calling out for support from organisations globally to sponsor the initiative and accelerate the critical developments that are needed.

Jenny said: “I’m passionate about patient advocacy and improving health outcomes, so it’s a privilege to have been appointed to the board of advisors at Leo’s Angels to help Emma and the team further their mission to enhance data-driven decision making in the epilepsy healthcare system.

“All patients deserve the best possible experience without having to deal with delays or confused decision-making, and I’m looking forward to using my experience to help shape the fantastic work the team is doing in Leo’s memory.”

Emma said: “Jenny is a hugely knowledgeable and respected figure in the healthcare industry, and we’re delighted to have her on the board of Leo’s Angels. Her track record of success in securing investment and improving recognition for patients is truly impressive, and her advice is going to be invaluable as we continue to drive forward.

“The manual nature of our healthcare system means there is a lack of efficiency which can slow down decision-making and cause communication issues, and we want to fix this. We can’t change what happened to Leo, but we can change outcomes for others with epilepsy in the future, and Jenny is going to help us achieve this. With more members also set to join the advisory board, it’s an exciting time for Leo’s Angels.”

For more information, please visit: https://leos-angels.com

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